Finding Out What is Wrong with Me...A Diagnosis FINALLY!

This blog is about my journey after being sick for almost 10 years and finally finding out what is wrong with me. It's my personal journey with Carcinoid Syndrome.  At times I may seem "eh" and other times I will be bleeding my heart out. If you would like to follow me on this journey - and I have no idea how or when it will end - I welcome you aboard! Oh. and I should mention they will probably be profanity at times because this has already been a rough road.

I was diagnosed with Carinoid Syndrome on July 1, 2015.  It is a very RARE form of Cancer and by the time you are actually diagnosed, you have more than likely had this cancer in your body for anywhere from 6-10 years.  Which means with Carcioid Syndrome, you already have a tumor someplace in your body, and naturally if you have a tumor, your have cancer. The hardest part is finding a doctor that specializes in this rare form of cancer. To say I was in shock would be an understatement! It also didn't help that I received the call from the doctor's office while I was on the road driving to get a photo of the rare white pelicans that had been in our area. I could barely see the road from crying after that call and I'm amazed I got to where I was going. I have known for a long time that something was not right but none of the doctors I've seen (and I've seen them all!) could ever diagnose it or and many wouldn't even try.Thankfully my Neurologist had a patient years ago with the same symptoms and he referred me to a Rheumatologist that knew enough to run the correct combination of tests. He ran them on a Thursday and I got my results on the following Monday. I was immediately referred to a specialist in a different city. More on that in my next post. In the meantime, to learn more about this cancer, please visit:http://www.carcinoid.org/content/ and spread the word. If You Don't Suspect, You Can't Detect It! Joyce ...