I've learned a lot more about Carcinoid/NET Cancer since my last post. None good - but being sick for so long, nothing seems to get to me at least. We are hoping to see one of the top 5 specialists that only treats Carcinoid/NET patients. He's based in Iowa, which is a doable drive from here, he comes highly recommended and we are fixing to talk to his office this coming Monday.
In the meantime, my best friend in the world, who I've known for over 35 years, has written up a Fund Me Now article. I'm just waiting for the right time to post it - I guess now is probably as good a time as any since once we go to Iowa there won't be a paycheck coming in. The thing that scares me more than dying is losing everything Mike and I have worked so hard for all of our lives. The cost to treat this Cancer (and it isn't even curable) is astronomical and face it, who has that kind of money anymore??? or ever did? and then to end up dying anyway?
I can tell that I'm getting sicker. If we do something one day, I'm bed the whole next week and sleep like I'm in a coma. I'm no longer able to eat some of my favorite foods, my balance is terrible (I finally bought a 4 footed cane) and I've noticed the dizzy spells are back.
Oh and the other lucky thing is my Vit D and Vit B12 levels are really dangerously low. But from what I've learned that is normal for this type of cancer.
I'm anxious to go to Iowa so see what the Dr has to say before I make up mind as what course I'm going to take. Plus I've joined a really good FB Group for this type of cancer. Very caring, very open, and very good at answering questions, which I have tons of still.
So with that, I'm going to call it a night. I'll try to catch up more often.
Til Next Time.
Joyce
