Tuesday, May 17, 2016

Link to my Go Fund Me Campaign

If you'd like to donate to my Go Fund Me campaign, just click the image below. If you can't or don't want to donate, I totally understand. But if you would please share the image below with your friends, family and anyone you know it would mean a great deal to me. Thank you!


Until Next Time
Joyce

Monday, May 9, 2016

We Have an Appointment FINALLY!

Yes, it's taken a long time to post again but I really haven't had a lot to post other than the nasty symptoms of this cancer.

But last week that all changed! I finally have an appointment with one of the top 5 doctors in the WORLD that treat this type of Cancer specifically.  WOOHOO!. He is located in Iowa and he will start with more tests and bloodwork and possibly some other things. I have been so anxious since finding out that I have been sick almost everyday other than from the Cancer. 

My best friend from high school wrote up a Go Fund Me page because the cost of treatment, travel, and every day expenses is going to astronomical but without seeing this doctor my life span is about 3-5 years. I need longer to live! I want longer to live!!  So I'm posting my link to the GoFundMe Page she set up and hope that anyone that visits this blog and reads this will consider donating - any amount helps! I will be eternally grateful to anyone for donating. And if you can't donate, could you please click on the photo and go to the bottom of the page and get the link and share that with everyone you know (and don't know even).  

Til Next Time.
Joyce


https://www.gofundme.com/22nu3rf8

Wednesday, March 23, 2016

3 Months Later...

It's been 3 months since I last posted - well not quite but almost. I made it thru the holidays, albeit a LOT of stress. And it was one of the worst Christmas's I can remember in a long time. It was my year to host it, and I just couldn't.  Too sick, too weak, too everything. So my niece graciously took my place.  Which I so appreciated but I had all these great plans that came to nothing.

I've learned a lot more about Carcinoid/NET Cancer since my last post. None good - but being sick for so long, nothing seems to get to me at least. We are hoping to see one of the top 5 specialists that only treats Carcinoid/NET patients. He's based in Iowa, which is a doable drive from here, he comes highly recommended and we are fixing to talk to his office this coming Monday.

In the meantime, my best friend in the world, who I've known for over 35 years, has written up a Fund Me Now article. I'm just waiting for the right time to post it - I guess now is probably as good a time as any since once we go to Iowa there won't be a paycheck coming in. The thing that scares me more than dying is losing everything Mike and I have worked so hard for all of our lives. The cost to treat this Cancer (and it isn't even curable) is astronomical and face it, who has that kind of money anymore??? or ever did? and then to end up dying anyway? 

I can tell that I'm getting sicker. If we do something one day, I'm bed the whole next week and sleep like I'm in a coma. I'm no longer able to eat some of my favorite foods, my balance is terrible (I finally bought a 4 footed cane) and I've noticed the dizzy spells are back. 

Oh and the other lucky thing is my Vit D and Vit B12 levels are really dangerously low.  But from what I've learned that is normal for this type of cancer. 

I'm anxious to go to Iowa so see what the Dr has to say before I make up mind as what course I'm going to take. Plus I've joined a really good FB Group for this type of cancer. Very caring, very open, and very good at answering questions, which I have tons of still.

So with that, I'm going to call it a night. I'll try to catch up more often.

Til Next Time.
Joyce